AUSTIN (KXAN) — Spending days at the hospital isn’t easy for anyone, but for kids? Being stuck in a room can be even more difficult.
But new in-home video technology that’s now being used by Child Neurology Consultants of Austin is making it much easier for families whose children have seizures to find out exactly what the problem is.
“I mean it’s terrifying, especially at first,” said Cindy Fleharty. “Eventually, it becomes your new normal, but it’s always just waiting for the other shoe to drop.”
Fleharty’s son Drew has epilepsy.
He frequently needs EEG to monitor activities in his brain. The process requires him to be at the hospital for several days.
“He misses out on his daily therapies. He has a schedule of physical therapy, occupational, speech. He rides horses for therapy and music therapy,” said Fleharty.
Besides disrupting his daily routine, with Drew being just 8-years-old, being stuck in the same room is simply tough.
“Drew’s gotten a reputation for ripping his leads off and letting us know he does not want to be there,” Fleharty said. “He does not want to be in the same room. He wants to be on the go. Moving, doing things all the time.”
Often, doctors said those long stays don’t even give them what they’re looking for.
“I always compare it to taking your car to the shop when it’s making a certain noise, and when you take the car in, it doesn’t make that noise. So you can’t get people to understand what you’re worried about,” said Dr. Karen Keough, pediatric neurologist.
The new mobile EEG and video will keep the families in the comfort of their homes, so kids won’t have to miss school to be monitored.
“It’s much easier to do repeated studies at home,” Dr. Keough said.