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The national eating disorder awareness week ribbon contributed by NEDA.

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A voice emerges from the voiceless

National Eating Disorder Awareness Week

Updated: Thursday, 04 Mar 2010, 4:20 PM CST
Published : Sunday, 28 Feb 2010, 12:54 AM CST

Austin (KXAN) - Gina Perez is lying unconscious in her bedroom when the flashing EMS lights glare into her home late one evening in 2010. Perez, a long time eating disorder sufferer, had recently gone through a stressful divorce and ceased eating...again. 32 years old, malnourished and dehydrated, EMS will transport her to a nearby hospital where she will receive fluids and regain consciousness. The following week she will check herself into a support group.

Anorexia Nervosa has one of the highest mortality rates among all mental illnesses. An internet search will tell you that anorexics (like Gina) are characterized by poor body image, low confidence and an extremely low body weight. While those symptoms are usually accurate, anorexia is a complex disorder with a long list of side effects. This past week (February 21-27), the National Eating Disorder Association (NEDA) in conjunction with Doctors, Therapists and victims worked to increase awareness of the signs and consequences of eating disorders.

Describing eating disorders can be difficult; Jill Rogers used her hands to explain how she felt the diagnostic manual reduced her to a bulleted list. According to Rogers—whose name, along with Perez’, were changed upon request—her struggle, she feels, has been oversimplified. “Google anorexia” she said in a frustrated tone, “and endless lists pop up naming the portion of the population most susceptible. You start believing that all suffers are white, emaciated, middle class, eighteen year old girls—black coffee in hand—who have turned to anorexia because their parents pushed them too hard.”

Rogers has been suffering from Anorexia and Bulimia since high school. She is almost 23, and although she is within what doctors consider to be a healthy weight range, she has yet to finish therapy.

While Rodgers is one of the 7 million women suffer from an eating disorder 1 million men have also been diagnosed. “The youngest patient I have is 12, I also have many middle aged and older aged patients, both men and women,” explained Rozana Zairfer-Sims, Clinical Director of Cedar Springs, North Austin’s Eating Disorder Treatment Center. Sitting behind her desk, Zairfer-Sims continued in a worried tone, she had been receiving reports of children as young as 7 saying they need to “lose weight.”

According to Zairfer-Sims, eating disorders do not always have obvious outward signs, they vary in severity and appearance; skinny, normal, or obese. While severe cases of Anorexia Nervosa may be obvious, other disorders such as Bulimia Nervosa, Binge Eating Disorder, or Eating Disorder Not Otherwise Specialized (ED-NOS) may not be as visually discernable. In addition, it’s important to realize that without proper treatment a disorder may ricochet between Bulimia, Anorexia or ED-NOS, as the patient ages. Zairfer-Sims stressed that eating disorders are not weight contingent; the ‘disorder’ is characterized by more subtle physical and psychological issues.

Categorizing eating disorders is also a problem for insurance companies. General practice calls to “certify” coverage for anorexic patients based on height and weight charts—a strange diagnosis technique for a mental health disease. Zaifer-Sims worries that many suffers fall outside of this cookie-cutter criteria, “If you and I are having a conversation, and the person next to you is just thinking about food, what she ate an hour ago and how she is going to get rid of calories, even though she is of normal weight, she has disordered eating.”

Today, even Martha Stewart looks gaunt, and celebrity mothers offer tips on how to stay thin during pregnancy; it seems as though disordered eating has already snuck into our popular culture. While societal norms are a contributing factor, the bigger problem, elaborated Zaifer-Sims, is when the eating disorder becomes a pursuit of perfection that can take over someone’s life. Suddenly, iceberg lettuce is the only thing in the grocery store, and jean shopping requires starvation preparation. Student loans are spent on food that is only to be “gotten rid of” later. Even more stable individuals may isolate themselves in order to avoid the triggers hidden in everyday activities.

The constant dieting, over exercising, or purging, forces the body to adapt in extreme and consequential ways. On the other side of this fragile equilibrium there are frequent black-outs, hypoglycemia, osteoporosis, uncontrollable shaking or paralysis from electrolyte imbalances, kidney damages, severe mood swings, or dehydration—to name a few. In addition, a chronic lack of nutrition can have more insidious effects like memory loss, poor concentration or brain damage.

Identifying the causes of poor body image, or body dysmorphia, can be difficult. Zairfer-Sims’ treatment allows each sufferer to unravel “all the contributing factors; family, social, temperament, and peer groups.” According to the NEDA, disorders may occur as a result of overbearing parents, sexual trauma, pressures,

societal ideals, or more often a tangle of multiple influences.

“If we look at the eating disorder as a way of communication, the eating disorder gives the patient an opportunity to voice her concerns, her anger, her frustration because her current situation doesn’t allow her to do that” said Zairfer-Sims. “It’s like having a confidant,” continued Zairfer-Sims “a toxic, life threatening one. Starving speaks a lot; it’s a sense of frustration and inadequacy about not being in control of your own voice.” The common theme is that the disorders seem to serve as a “coping mechanism” explained Zairfer-Sims, there are so many variants because they each address a unique problem.

For example, patients being treated for Bulimia are asked to examine “what they are trying to throw up.” She encourages her patients to take the frustration, anger, and uncomfortable emotions and “throw them out there” instead of using past coping mechanisms. In “throwing it out there” each patient can begin forming a position of authority and a voice, which is crucial in treatment. “It’s an opportunity to reframe the behaviors.” Zairfer-Sims understands the baggage that comes with an eating disorder, “Everyone should cope. Eating disorders are a way of coping with the things life throws at us. It’s why recovery takes so long. Eating Disorders have become a source of comfort for the individual, but let’s find a different way.”

At Cedar Springs, peers and professionals challenge each other to communicate stresses and concerns, rather than remaining silent. The key, said Zaifer-Sims “is how to transition back to the community.”

They use the outpatient structure—patients meet 6-10 hours a day, 6 days a week—to provide the opportunity to remain connected to the “real world” while still receiving help and support. Group therapy and accountability are important, explained Zairfer-Sims. They help patients temper the mindset that they are infinitely resilient, that they can adapt and weather their way through any adversity (self-imposed or otherwise). The group celebrates each other’s success as they face life’s everyday challenges together and help a patient gain a sense of confidence to develop “autonomy from the eating disorder.”

Cedar Springs addresses the disorder through a comprehensive three-pronged nutritional, therapeutic, and psychological approach. Treatment can be complicated—many patients are nutritionally compromised and re-feeding poses a great health risk. “It is not something that should be done at home, it needs to be monitored because of the potential medical complications” said Zairfer-Sims. “While there is a lot of fear when starting a meal plan, patients might not even be able to take in therapy without it.” The body is a connective and wondrous thing that can adapt to even the most extreme habits. As a result, the diets assigned by Cedar Springs need to be strictly abided by until the body recovers a degree of normalcy.

Some parents or spouses don’t realize it, explained Zairfer-Sims, but outside influences like someone dieting or conspicuously watching their weight can be very stressful for a patient in recovery. Each patient has varying and sometimes unknown triggers which cause them to regress into past behaviors. A trigger could be a stressful day or an off-hand comment. “Families need to be careful with what we chose to say, what we watch on TV, and what choices we make. Our children notice.” Zairfer-Sims expressed her frustration after watching a TV show with very thin women receiving Botox and advertisements with gaunt girls positioned next to horses. “You can’t ride a horse emaciated” She proclaimed. “When you’re an adult, you can take these things with a grain of salt, a child can’t.”

“I would love for the goal to be a decrease in eating disorder and an increase in treatment and prevention” Zairfer-Sims said. With a grin she exclaimed, “Listen, life is tough! People want to be healthy and then they turn on the TV to Victoria Secret Models, but I would never recommend a world like that, being fake and airbrushed and not able to show how a body really is.”

The real challenge, is deciding whether “you are going to go along with all of these messages, or focus more on your inner strengths” explained Zairfer-Sims. A sign of true recover, is “speaking for yourself instead of using your symptoms to speak for you. Being able to walk away saying, yes I am a wonderful person.”

Increase your knowledge and awareness of eating disorders at NEDA , and

For information about local treatment options contact Cedar Springs .

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